by AKU | Aug 10, 2016 | Uncategorized
This week is Lydia’s last week at the AKU Society. We are sad to see her go and want to thank her for all she has achieved for AKU patients. In this week’s blog, Lydia shares her highlights, what she has learnt and her plans for the future. It has been a...
by AKU | Aug 3, 2016 | Uncategorized
Last week Eve attended a patient group workshop organised by Genetic Alliance UK, which aimed to understand the patient perspective on important issues affecting rare disease patients in Wales. This week’s blog highlights the key discussions taken from the...
by AKU | Aug 1, 2016 | Uncategorized
On Sunday 2nd October, AKU supporter, Katie will take part in the Cardiff Half Marathon to raise money for AKU. In this week’s blog, Katie shares why she is fundraising for AKU and how she plans to prepare for the big event Hiya, I’m Katie, a 22-year-old...
by AKU | Jul 27, 2016 | Uncategorized
When AKU patients attend the National AKU Centre (NAC) they are advised to follow a controlled protein diet, as nitisinone affects their blood tyrosine levels. AKU dietitian, Shirley Judd helps patients change and manage their diet effectively. This week’s...
by AKU | Jul 12, 2016 | Uncategorized
The Royal College of Nursing (RCN) Congress is the biggest event of the annual nursing calendar, with more than 4,000 nurses from all specialities and regions meeting to learn, share and develop nursing practice and influence health policy debates. This year the...
