by AKU | Sep 21, 2016 | Uncategorized
Since employing our first ever Fundraising Officer back in September 2015, we have massively expanded our community fundraising and raised lots of money and awareness for AKU. In this week’s blog, we highlight our key fundraising successes and look forward to...
by AKU | Sep 14, 2016 | Uncategorized
Yesterday was Oliver’s six year anniversary at the AKU Society. Lots has changed over the last few years and in today’s blog, he tells us about some of the achievements and challenges over that time. How has the AKU Society changed over the past 6 years? I started at...
by AKU | Sep 7, 2016 | Uncategorized
his week is Remember a Charity in Your Will Week, an annual awareness week designed to encourage more people to consider leaving a gift to charity when writing a will. This week’s blog highlights the importance of will writing, encouraging our supporters to take...
by AKU | Aug 24, 2016 | Uncategorized
In August, rare disease patient advocacy organisation, Global Genes hosted a webinar supporting rare disease patients to effectively communicate with their healthcare providers. This week’s blog highlights the key messages taken from the webinar. Global Genes,...
by AKU | Aug 17, 2016 | Uncategorized
Over the past month, Ciarán has travelled to London and Leicester to attend meetings held by the Specialised Healthcare Alliance (SHCA). In today’s blog, he explains why he attends these meetings and why the work of the SHCA is so important.The SHCA is an...
