by AKU | Jul 23, 2014 | Uncategorized
In November 2013 our Welsh AKU patients were allowed to visit the National Alkaptonuria Centre (NAC) for the first time. However, we have recently discovered they may not be able to come back for their follow up visits. This has got us thinking about the true value of...
by AKU | Jul 16, 2014 | Uncategorized
In November 2013 our Welsh AKU patients were allowed to visit the National Alkaptonuria Centre (NAC) for the first time. However, we have recently discovered they may not be able to come back for their follow up visits. This has got us thinking about the true value of...
by AKU | Jan 25, 2014 | Uncategorized
With Rare Disease Day just three days away, we are already getting ready to campaign, celebrate and raise awareness. In today’s blog we explain what Rare Disease Day is, and how you can get involved. Awareness Rare Disease Day happens on the last day of February...
