Researching DevelopAKUre: A Pioneering Patient-Led Trial

Researching DevelopAKUre: A Pioneering Patient-Led Trial

Angela is a Masters student at Imperial College in London. She is studying Science Communication, and for her dissertation she has decided to research our very own DevelopAKUre clinical trial. In this week’s blog Angela tells us why she finds our trial so interesting...
Empowering Patients Through Information & Support

Empowering Patients Through Information & Support

On the 1st July we made our way to the Royal College of Surgeons in London for the Patient Information Forum’s (PiF) Annual Conference. This year the focus was around turning rhetoric in to reality by empowering patients through information and support. It was also...

Your Opinion Matters

We are currently promoting a survey which aims to discover how we can improve our resources and services for everyone. We also want to find out about the quality of life our patients experience, and how our services impact on this. In this week’s blog we explain why...
Our Fifth Patient Workshop: A Day at the Zoo

Our Fifth Patient Workshop: A Day at the Zoo

Our fifth patient workshop took place at London Zoo on Saturday. It was a great opportunity for patients, family members and friends to meet one another, share experiences and learn more about AKU. The day started off with an hour’s zoo time, where everyone got the...
Patients and Pharma: How to Work Together

Patients and Pharma: How to Work Together

Last week was a busy one, with not one, but two events focusing on how pharmaceutical companies and patient groups can work together to create better research. On Monday and Tuesday, Oliver attended EyeForPharma’s conference: “Patient-Centric Clinical Trials”. On...