by AKU | Feb 17, 2016 | Uncategorized
The AKU Society has been doing lots of fundraising to raise money for our first International Patient Workshop due to take place on 20th April. In this week’s blog we introduce some of our Cambridge Half Marathon runners and explain our plans to expand our...
by AKU | Feb 16, 2016 | Uncategorized
The AKU Society’s office is based in the beautiful city of Cambridge, and on 28th February we were lucky enough to have nine brave supporters taking part in the Cambridge Half Marathon for AKU! We are thrilled to announce that in total they raised a huge £2,427, which...
by AKU | Feb 9, 2016 | Uncategorized
On 29th February, we celebrated Rare Disease Day – a day designed to raise awareness of rare diseases, encourage service improvements and ensure that patients’ voices are heard. The theme of the day was appropriately named, ‘Patient Voice’, and the AKU team joined...
by AKU | Feb 9, 2016 | Uncategorized
This week’s blog comes from Ciaran McCarron, an MSc student who has led a project for the AKU Society looking at the cost effectiveness of nitisinone (the drug we trial in DevelopAKUre).The project will allow DevelopAKUre to gain an in-depth understanding of the cost...
by AKU | Feb 3, 2016 | Uncategorized
In December, I attended a seminar that bought together medical experts, patients and patient representatives to discuss the difficulties and challenges faced by chronic pain patients. This week’s blog highlights the important discussions and messages that were...
