by AKU | May 25, 2016 | Uncategorized
Last Month Eve and Hannah met Rheumatology patient, Shanali Perera at the BSR conference in Glasgow. In this week’s guest blog, Shanali shares her experience of becoming a patient in her own speciality and how digital art therapy has supported her in taking control...
by AKU | May 18, 2016 | Uncategorized
This week is mental health awareness week, designed to raise awareness of mental health issues, encourage open discussions and push for improvements to these underfunded services. This week’s blog talks about the importance of managing mental health effectively...
by AKU | May 11, 2016 | Uncategorized
The Robert Gregory National AKU Centre (NAC) opened in Liverpool in 2012, providing annual health assessments and access to the drug nitisinone to AKU patients over 16 living in England and Scotland. In this week’s blog we introduce Shelley Jones, who took over as...
by AKU | May 4, 2016 | Uncategorized
Last week Eve and Hannah travelled all the way up to Glasgow to exhibit at the Rheumatology Conference held at the Scottish Exhibition and Conference Centre. This week’s blog talks about the big event and the importance of raising awareness of AKU among...
by AKU | Apr 27, 2016 | Uncategorized
Last week our first International Patient Workshop took place in Liverpool, bringing together the biggest collection of AKU patients ever! In this week’s blog, find out more about the day and the importance of supporting our international patients and their families,...
