by AKU | May 30, 2018 | Uncategorized
A rare disease is defined by the European Union (EU) as affecting fewer than one in 2,000 people. Considered together, though, rare diseases are common. Between six and eight per cent of the EU population has one of the 7,000 known rare diseases – that’s...
by AKU | May 23, 2018 | Uncategorized
You might have noticed that there have been some recent changes to the board of trustees. Here is an overview of what’s happened. Firstly, we’d like to say goodbye to Colleen Addicott, who is stepping down after 10 years. Colleen has been a great help to us,...
by AKU | May 16, 2018 | Uncategorized
Osteoarthritis is a very common joint disease. When cartilage and underlying bone in the joints break down, sufferers can feel pain, stiffness, numbness and swellings. Fingers and thumbs are most often affected, as well as the neck, lower back, knees and...
by AKU | May 2, 2018 | Uncategorized
April 23rd, 2018 was St. George’s Day. For us, though, it was the start of our second International Patient Workshop. This brought together 89 people – AKU patients, supporters, researchers and staff – from around the world to network and share advice. Patients came...
by AKU | Apr 18, 2018 | Uncategorized
The University of Siena is a valued member of DevelopAKUre, the international consortium which we put together in 2012 to find a treatment for AKU. Although there are no clinical trial sites in Italy, some of the most important scientific work takes...
