by AKU | Jul 19, 2017 | Uncategorized
In this week’s blog, we speak to AKU patient Antony Kelly. Antony has been kind enough to tell us about his experience with AKU, sharing his patient story with us he talks us through his initial diagnosis to how AKU affects him today. I was first diagnosed with AKU at...
by AKU | Jul 11, 2017 | Uncategorized
Oliver has worked at the AKU Society for the last 7 years, and has been CEO for the last 2. At the end of this week, he’ll be leaving to move into a new role at Roche but will still be helping rare disease patients to access new treatments. In today’s blog, Oliver...
by AKU | Jul 5, 2017 | Uncategorized
On Thursday, June 29th, Robin and Hannah travelled up to Liverpool for the 2017 Stand Up For AKU Comedy Night. Held at the Hot Water Comedy Club in Liverpool, the event had some of the local Liverpool circuits top comics billed to perform, with an exciting headline...
by AKU | Jun 28, 2017 | Uncategorized
On September 3rd the AKU Society will have 6 runners in the 2017 Spartan Race. This event has competitors take on a 5k course mixed with gruelling obstacles and endurance challenges. Our competitors have volunteered to take part in this event to raise some...
by AKU | Jun 21, 2017 | Uncategorized
On 26th July we are excited to be holding our first ever Children’s Workshop. This event will be a fun, child friendly day, which will also teach children about AKU. Held at London Zoo, the workshop will have lots of exciting activities throughout the day. There will...
