Liesbeth’s research visit to the University of Liverpool

by AKU | Feb 15, 2024 | AKU Blog

Our latest blog is written by Liesbeth Desmet, a PhD student at the Vrije Universiteit Brussel (VUB). She recently participated in our early-stage researcher bursary programme to visit the University of Liverpool and expand her knowledge of AKU research: I am a PhD...

Nitisinone programme for international patients

by AKU | Feb 9, 2024 | AKU Blog, Uncategorized

Our latest blog looks at CyclePharma and Inceptua Group’s Free Goods Programme which will support AKU patients in 16 countries around the world to access nitisinone. Nitisinone is a vital treatment for AKU, but it is not yet approved or commercially available in many...

Support

by AKU | Nov 9, 2023

Support The AKU Society aims to provide assistance, information, and resources for all individuals living with AKU. Whether you are a patient, caregiver, or healthcare professional, we offer various forms of support to help you navigate the challenges associated with...

AKU Global Patient Registry

by AKU | Oct 18, 2023

AKU Global Patient Registry If you have been diagnosed with AKU anywhere in the world, you can make an important contribution to our research into understanding, treating, and curing the condition.    Join the registry What is the AKU patient registry? Our global...

Patient Communities

by AKU | Sep 15, 2023

Patient Communities Rare disease patients often report feeling lonely and isolated due to the lack of awareness and understanding surrounding their disease. Patients are sparsely located all over the world and it can be difficult to identify and connect with one...