by AKU | Oct 7, 2020 | Uncategorized
Our annual Garrod Day Coffee Morning is approaching again! However, this year we are taking a slightly different approach with Garrod Day as we are going virtual! Yes, on 25th November we are hosting a virtual Garrod Day Coffee Morning. What is Garrod Day? Garrod Day...
by AKU | Oct 1, 2020 | Uncategorized
Good news! The AKU Society has been awarded a £45,000 grant from the National Lottery Coronavirus Community Support Fund. This emergency COVID-19 fund will support us for the next six months to support patients mental health. We have completed two...
by AKU | Sep 23, 2020 | Uncategorized
The AKU Society is proud to announce that the European Medicines Agency (EMA), which regulates medications across Europe, has given a positive opinion on the extension of the use of nitisinone to treat AKU. This means the EMA feels that nitisinone can be...
by AKU | Sep 4, 2020 | Uncategorized
This weeks blog is written by our placement student, Marina, from Royal Holloway University London. Hello, I’m Marina and I am going into my third year in Biomedical Sciences at Royal Holloway University of London. I am originally from Barcelona, Spain, and...
by AKU | Jul 31, 2020 | Uncategorized
We are trying to diagnose new patients in the UK by asking people with black spots on the white of their eyes to send us photos of the black spots to see if they need a test for AKU. As a lot of you are aware, the pain from AKU gets worse when patients are...
