by AKU | Jun 15, 2016 | Uncategorized
Last week our first ever AKU comedy night took place in Cambridge. This week’s blog talks about the big night and how such events are helping us to expand our community fundraising. Last Thursday, the AKU team were busy preparing for our first ever charity comedy...
by AKU | Jun 8, 2016 | Uncategorized
In this week’s blog, Oliver talks about attending the 8th European Conference on Rare Diseases and Orphan Products (ECRD) In Edinburgh. Where he was asked to present DevelopAKUre as a game changer in drug development, authorisation and access. Oliver also explains...
by AKU | Jun 1, 2016 | Uncategorized
In the rare disease world, communication is king. Patients must communicate with those around them in order to get support, much needed help and to raise the profile of their disease. For rare disease patient groups, effective communication is just as...
by AKU | May 25, 2016 | Uncategorized
Last Month Eve and Hannah met Rheumatology patient, Shanali Perera at the BSR conference in Glasgow. In this week’s guest blog, Shanali shares her experience of becoming a patient in her own speciality and how digital art therapy has supported her in taking control...
by AKU | May 18, 2016 | Uncategorized
This week is mental health awareness week, designed to raise awareness of mental health issues, encourage open discussions and push for improvements to these underfunded services. This week’s blog talks about the importance of managing mental health effectively...
