Global AKU patient registry

Global AKU patient registry

  We are excited to announce the launch of our global AKU patient registry. Our registry will play a crucial role in increasing our understanding of AKU and driving research into potential treatments and cures. Over the past year, we have been working with...
Liesbeth’s research visit to the University of Liverpool

Liesbeth’s research visit to the University of Liverpool

Our latest blog is written by Liesbeth Desmet, a PhD student at the Vrije Universiteit Brussel (VUB). She recently participated in our early-stage researcher bursary programme to visit the University of Liverpool and expand her knowledge of AKU research: I am a PhD...
Nitisinone programme for international patients

Nitisinone programme for international patients

Our latest blog looks at CyclePharma and Inceptua Group’s Free Goods Programme which will support AKU patients in 16 countries around the world to access nitisinone. Nitisinone is a vital treatment for AKU, but it is not yet approved or commercially available in many...