by AKU | Oct 17, 2014 | Uncategorized
On 12th September, Findacure held a workshop at the Royal College of Nursing in London on how to manage a small rare diseases patient group. Our own CEO and Chairman, Nick Sireau, spoke on his experience managing the AKU Society. In this week’s blog we hear about some...
by AKU | Aug 27, 2014 | Uncategorized
Last week Hannah and Sorsha visited the grand opening of the new Shree Swaminarayan Mandir Temple in Kingsbury, London. They were there to receive a generous donation to support the work of the AKU Society. In this week’s blog we hear about the day, and learn more...
by AKU | Aug 6, 2014 | Uncategorized
Next week we will be launching the research and science expert forum on PatientsLikeMe. Before the week begins, we would like to give you a little more information on the structure of the events. We also have a few more experts to reveal! The research and science...
by AKU | Jan 25, 2014 | Uncategorized
With Rare Disease Day just three days away, we are already getting ready to campaign, celebrate and raise awareness. In today’s blog we explain what Rare Disease Day is, and how you can get involved. Awareness Rare Disease Day happens on the last day of February...
