by AKU | Apr 3, 2020 | Uncategorized
The COVID-19 pandemic is affecting everyone’s way of life. At the AKU Society, we are all working from home and looking at ways we can continue to support patients during this pandemic. Community fundraising events and sponsorships need to be put on hold for...
by AKU | Mar 19, 2020 | Uncategorized
—————–Update: 8th October 2020 —————- Since our last update, the picture across the country is changing rapidly. Each home nation now has its version of advice and regulations that need to be reviewed before making any decisions on when and if you mix with...
by AKU | Jan 17, 2020 | Uncategorized
Today’s blog is written by a long-time friend of the AKU Society Jess Barnes. Jess’ son was diagnosed with AKU six years ago. When I found out that the AKU Society needed support in funding the first-ever paediatric study into alkaptonuria, I knew I needed to...
by AKU | Dec 13, 2019 | Uncategorized
Five years ago, we partnered with the Royal College of GPs (RCGP) to develop an online eLearning module all about AKU. The aim of this module is to increase awareness of AKU among health professionals, especially GPs, and ultimately to improve diagnosis. This was...
by AKU | Oct 25, 2019 | Uncategorized
We are only one month away from Garrod Day! On the 25th November, we celebrate the birthday of Sir Archibald Garrod, the AKU pioneer who first understood the inherited nature of the disease way back in 1902. Garrod day is marked by hosting coffee mornings all over the...
