by AKU | Sep 19, 2018 | Uncategorized
Preparations are underway for Stand up for AKU! – our charity comedy night, coming up on 3rd October at 7.30pm. It’s in Cambridge’s Portland Arms, a great venue for live comedy. Five professional comedians (Pam Ford, Rob Coleman, Jason Stampe, Jenny B...
by AKU | Mar 10, 2017 | Uncategorized
Every year people from all over the word come together to celebrate Rare Disease Day. A day designed to raise awareness, bring together the community and to highlight some of the fantastic work that is being done in the rare disease area. This year was the day’s...
by AKU | Dec 7, 2016 | Uncategorized
Last week, we welcomed Robin, to the AKU Society team! As our new Admin and Events Officer, he will organise fundraising events, help the rest of the team with the administration of the Society and all its projects, including the NAC and DevelopAKUre and report to the...
by AKU | Jun 29, 2016 | Uncategorized
The National AKU Centre (NAC) opened its doors to the first AKU patients back in June 2012. It is now 4 years on and the NAC continues to grow and develop. Our Patient Support Manager, Hannah has been there from the very beginning and remains an integral part of the...
by AKU | Nov 25, 2015 | Uncategorized
Today is a very important day in the history of AKU, as it is Sir Archibald Garrod’s birthday! Sir Archibald Garrod discovered AKU in 1902; the first genetic disease ever to be discovered. In this week’s blog we celebrate his fantastic achievements! On 25th...
