DevelopAKUre
DevelopAKUre The DevelopAKUre programme was a series of major international clinical trials, run by a consortium of 12 European partners. It aimed to study a drug, called nitisinone, and assess its effectiveness in treating AKU. The DevelopAKUre clinical trials...National AKU Centre (NAC)
National AKU Centre (NAC) The Robert Gregory National Alkaptonuria Centre Many people diagnosed with alkaptonuria (AKU) have difficulty accessing efficient and effective care to treat their AKU. For some, there has been a lack of local expertise and knowledge when...What is AKU?
What is AKU? Alkaptonuria, also known as AKU or Black Bone Disease, is an extremely rare genetic condition, which can cause significant damage to the bones, cartilage and tissues of those affected. AKU normally only affects one in every 250,000 people worldwide. AKU...