by AKU | Feb 11, 2015 | Uncategorized
On Tuesday 17th February we will be launching a new crowdfunding campaign on Indiegogo! In 2013 we raised over $100,000 thanks to your generosity and support. In this week’s blog we explain why it is time for another campaign. In just 6 days time we will be launching...
by AKU | Nov 11, 2014 | Uncategorized
Eurordis has recently launched a campaign and petition to make 2019 the official European Year for Rare Diseases. Sorsha joined their webinar to find out more about the campaign. In this week’s blog she talks about what she learned, and why it is valuable for rare...
by AKU | Oct 14, 2014 | Uncategorized
On Sunday 5th October Katie ran the Cardiff Half Marathon to raise money for the AKU Society. She decided to do this in support of her Dad, who has AKU. Not only did she beat her fundraising target, she also beat her personal best time in the race! In this week’s blog...
by AKU | Jul 30, 2014 | Uncategorized
Our SONIA 2 clinical trial is underway at all our sites across Europe. Conducting such a complex trial across three countries is not easy, but the teams at each centre have been working hard to ensure everything runs smoothly. Today we take a look at how the trial is...
