Chris’s Story: Bringing AKU Awareness to the Football Pitch

Chris’s Story: Bringing AKU Awareness to the Football Pitch

by | Sep 10, 2025 | AKU Blog

Raising awareness of Alkaptonuria (AKU) is at the heart of what we do at the AKU Society. As a rare condition, AKU is often misunderstood or overlooked. This lack of awareness can delay diagnosis, limit support, and leave patients feeling isolated. That is why patient...
New PhD Launch, FDA Milestone, & Pain Awareness Ahead

New PhD Launch, FDA Milestone, & Pain Awareness Ahead

by | Aug 12, 2025 | AKU Blog

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Self-Care 4 Rare

by | Jul 21, 2025

Self-Care 4 Rare When you’re living with a rare condition like Alkaptonuria (AKU), self-care is about taking consistent, intentional steps to support both your physical and mental wellbeing. It’s a vital part of living well with AKU, helping you recognise and...
Beyond the Biology: The Emotional Landscape of AKU

Beyond the Biology: The Emotional Landscape of AKU

by | Jul 18, 2025 | AKU Blog

Alkaptonuria (AKU) is a rare genetic condition that affects 1 in 250,000 to 500,000 people globally. Caused by a missing enzyme that breaks down a substance called homogentisic acid (HGA), AKU leads to the darkening of bones and cartilage, and can cause joint damage,...