New PhD Launch, FDA Milestone, & Pain Awareness Ahead

by AKU | Aug 12, 2025 | AKU Blog

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Awareness Events Calendar 

by AKU | Aug 7, 2025

Awareness Events...

Self-Care 4 Rare

by AKU | Jul 21, 2025

Self-Care 4 Rare When you’re living with a rare condition like Alkaptonuria (AKU), self-care is about taking consistent, intentional steps to support both your physical and mental wellbeing. It’s a vital part of living well with AKU, helping you recognise and...

Beyond the Biology: The Emotional Landscape of AKU

by AKU | Jul 18, 2025 | AKU Blog

Alkaptonuria (AKU) is a rare genetic condition that affects 1 in 250,000 to 500,000 people globally. Caused by a missing enzyme that breaks down a substance called homogentisic acid (HGA), AKU leads to the darkening of bones and cartilage, and can cause joint damage,...

Why Movement Matters: Exploring Water Exercise, Pilates, and Pain Management for AKU

by AKU | Jul 18, 2025 | AKU Blog

When it comes to choosing the right kind of activity, low-impact exercises can help slow the progression of osteoarthritis- a common complication of Alkaptonuria (AKU). While high-impact and contact sports are typically discouraged due to the stress they place on...