by AKU | Mar 23, 2016 | Uncategorized
Last week, Cambridge Rare Disease Network (CRDN) organised an event designed to encourage discussion about the potential need for a rare disease home nursing service. This week’s blog talks about the important messages taken from the event. There are over 7,000...
by AKU | Feb 17, 2016 | Uncategorized
The AKU Society has been doing lots of fundraising to raise money for our first International Patient Workshop due to take place on 20th April. In this week’s blog we introduce some of our Cambridge Half Marathon runners and explain our plans to expand our...
by AKU | Feb 16, 2016 | Uncategorized
The AKU Society’s office is based in the beautiful city of Cambridge, and on 28th February we were lucky enough to have nine brave supporters taking part in the Cambridge Half Marathon for AKU! We are thrilled to announce that in total they raised a huge £2,427, which...
by AKU | Feb 3, 2016 | Uncategorized
In December, I attended a seminar that bought together medical experts, patients and patient representatives to discuss the difficulties and challenges faced by chronic pain patients. This week’s blog highlights the important discussions and messages that were...
by AKU | Feb 2, 2016 | Uncategorized
Last week I attended a symposium in Brussels on Improving Patient Access to Rare Disease Therapies. By involving all stakeholders and collaborating on a European level, we can ensure that all patients have access to live-saving approved treatments. This...
