by AKU | May 11, 2016 | Uncategorized
The Robert Gregory National AKU Centre (NAC) opened in Liverpool in 2012, providing annual health assessments and access to the drug nitisinone to AKU patients over 16 living in England and Scotland. In this week’s blog we introduce Shelley Jones, who took over as...
by AKU | May 4, 2016 | Uncategorized
Last week Eve and Hannah travelled all the way up to Glasgow to exhibit at the Rheumatology Conference held at the Scottish Exhibition and Conference Centre. This week’s blog talks about the big event and the importance of raising awareness of AKU among...
by AKU | Apr 20, 2016 | Uncategorized
Today we are hosting our first ever International Patient Workshop in Liverpool. In honour of this monumental occasion, we are introducing 2 of our international patients who have travelled all the way from Canada and Argentina to attend the workshop. In this week’s...
by AKU | Apr 6, 2016 | Uncategorized
On 23rd March, Genetic Alliance UK launched a new patient charter on access to medicines for rare disease patients in Scotland. This week’s blog highlights the important recommendations generated from the project, where a range of patient organisations gave their...
by AKU | Mar 30, 2016 | Uncategorized
Last week, Oliver presented the DevelopAKUre project at a meeting for the Dutch Organisation of Biotechnologies Companies (HollandBIO). DevelopAKUre has close links to the Dutch company, PSR, who act as the medical monitors in our clinical trials. This week’s blog...
