No Two Stories Alike: Living with AKU Pain

No Two Stories Alike: Living with AKU Pain

Not all pain can be seen, yet its effects can reach into every part of life. It may mean cancelling plans, stepping back from hobbies, or even stepping back from work – all changes that people don’t always associate with pain. And alongside these practical...

Pain Management

Pain Management This is a virtual pain management session, led by Dr Andrew Jones, who is a pain specialist from the National AKU Centre in Liverpool. This session covers what pain is and how it can affect us both emotionally and physically. Dr Jones also discusses...
Chris’s Story: Bringing AKU Awareness to the Football Pitch

Chris’s Story: Bringing AKU Awareness to the Football Pitch

Raising awareness of Alkaptonuria (AKU) is at the heart of what we do at the AKU Society. As a rare condition, AKU is often misunderstood or overlooked. This lack of awareness can delay diagnosis, limit support, and leave patients feeling isolated. That is why patient...

Self-Care for Rare

Self-Care for Rare Prioritising wellbeing with AKU Self Care for Rare is our annual wellbeing campaign, held each July to coincide with Chronic Disease Awareness Day and the International Day of Self-Care. The campaign is dedicated to exploring practical ways to...