by AKU | Jan 17, 2020 | Uncategorized
Today’s blog is written by a long-time friend of the AKU Society Jess Barnes. Jess’ son was diagnosed with AKU six years ago. When I found out that the AKU Society needed support in funding the first-ever paediatric study into alkaptonuria, I knew I needed to...
by AKU | Dec 16, 2019 | Uncategorized
Today’s blog is written by the head of the Brazilian AKU Society, Flavia Mayrink. Originally written in Portuguese, the blog details her recent visit to the National Institutes of Health (NIH) which is based in Bethesda, Maryland, USA.In September...
by AKU | Dec 16, 2019 | Uncategorized
We are delighted to announce that all the data from the SONIA 2 clinical trial has now been analysed and very positive trends have been highlighted. Due to this, SOBI (Swedish Orphan Biovitrum) announced that they are going to apply to the European Medicines...
by AKU | Oct 25, 2019 | Uncategorized
We are only one month away from Garrod Day! On the 25th November, we celebrate the birthday of Sir Archibald Garrod, the AKU pioneer who first understood the inherited nature of the disease way back in 1902. Garrod day is marked by hosting coffee mornings all over the...
by AKU | Sep 27, 2019 | Uncategorized
We are busy preparing for our annual Garrod Day Coffee Morning on the 25th of November. This year’s Garrod Day will be an international event, with coffee morning’s being held all over the world. In this week’s blog, you can learn some fantastic top tips on how to...
