by AKU | Sep 21, 2016 | Uncategorized
Since employing our first ever Fundraising Officer back in September 2015, we have massively expanded our community fundraising and raised lots of money and awareness for AKU. In this week’s blog, we highlight our key fundraising successes and look forward to...
by AKU | Sep 14, 2016 | Uncategorized
Yesterday was Oliver’s six year anniversary at the AKU Society. Lots has changed over the last few years and in today’s blog, he tells us about some of the achievements and challenges over that time. How has the AKU Society changed over the past 6 years? I started at...
by AKU | Aug 17, 2016 | Uncategorized
Over the past month, Ciarán has travelled to London and Leicester to attend meetings held by the Specialised Healthcare Alliance (SHCA). In today’s blog, he explains why he attends these meetings and why the work of the SHCA is so important.The SHCA is an...
by AKU | Aug 3, 2016 | Uncategorized
Last week Eve attended a patient group workshop organised by Genetic Alliance UK, which aimed to understand the patient perspective on important issues affecting rare disease patients in Wales. This week’s blog highlights the key discussions taken from the...
by AKU | Aug 1, 2016 | Uncategorized
On Sunday 2nd October, AKU supporter, Katie will take part in the Cardiff Half Marathon to raise money for AKU. In this week’s blog, Katie shares why she is fundraising for AKU and how she plans to prepare for the big event Hiya, I’m Katie, a 22-year-old...
