Virtual Coffee & a Chat

Virtual Coffee & a Chat

We are excited to announce we are hosting our first virtual ‘Coffee & Chat’ event! What is a ‘Coffee & Chat’? This is where you take a break from your day and join in on our video chat to chat and catch up with the AKU community. Feel free to invite...
ECRD 2020

ECRD 2020

Last week the AKU Society team attended the 10th European Conference on Rare Diseases 2020 (ECRD 2020), hosted by Eurordis – a charity that represents rare disease patients across Europe. Every two years the ECRD is held in a European country and...
Virtual Fundraising

Virtual Fundraising

The COVID-19 pandemic is affecting everyone’s way of life. At the AKU Society, we are all working from home and looking at ways we can continue to support patients during this pandemic. Community fundraising events and sponsorships need to be put on hold for...

AKU Patients and COVID-19

—————–Update: 8th October 2020 —————- Since our last update, the picture across the country is changing rapidly. Each home nation now has its version of advice and regulations that need to be reviewed before making any decisions on when and if you mix with...
Cambridge Half Marathon 2020 – On The Day

Cambridge Half Marathon 2020 – On The Day

On Sunday 8th March, our Fundraising Officer Juliet and CEO Nick were at Midsummers Common in the centre of Cambridge to cheer on our half marathon runners Juliette and Rob. They braved the 13-mile Saucony Cambridge Half Marathon around...