The EMA’s Decision and Nitisinone

The EMA’s Decision and Nitisinone

The AKU Society is proud to announce that the European Medicines Agency (EMA), which regulates medications across Europe, has given a positive opinion on the extension of the use of nitisinone to treat AKU. This means the EMA feels that nitisinone can be...
Cambridge Half Marathon 2020 – Meet The Runners

Cambridge Half Marathon 2020 – Meet The Runners

In this week’s blog, we would like to introduce our 2020 Cambridge Half Marathon Runners! The Half Marathon will be on the 8th March starting on Midsummer Common before winding its way through the historic Cambridge centre. We have three runners braving the 13-mile...
AKU Society Brazil – Flavia at the NIH

AKU Society Brazil – Flavia at the NIH

Today’s blog is written by the head of the Brazilian AKU Society, Flavia Mayrink. Originally written in Portuguese, the blog details her recent visit to the National Institutes of Health (NIH) which is based in Bethesda, Maryland, USA.In September...
One Month to Go until Garrod Day!

One Month to Go until Garrod Day!

We are only one month away from Garrod Day! On the 25th November, we celebrate the birthday of Sir Archibald Garrod, the AKU pioneer who first understood the inherited nature of the disease way back in 1902. Garrod day is marked by hosting coffee mornings all over the...