by AKU | Oct 5, 2015 | Uncategorized
This week is our Online Communication Officer, Eve’s last week at the AKU Society. Eve started working as Admin Assistant back in November 2014 before changing roles to Online Communications Officer in October 2015. In this week’s blog, she shares her highlights over...
by AKU | Sep 9, 2015 | Uncategorized
Are you a registered organ donor? Did you know, even if you have a genetic condition, you can still join the NHS Organ Donor Register? It’s National Transplant week, and today Hannah, our Patient Support Manager, talks about organ donation, and what AKU...
by AKU | Aug 26, 2015 | Uncategorized
Last week Hannah updated us on her training efforts in preparation for our sponsored cycle from London to Cambridge. This week we hear from Sorsha and Eve, who have also been training hard, and getting the route ready for the team. Eve: Along the Norfolk Coast With...
by AKU | Jul 22, 2015 | Uncategorized
The SHCA is a coalition of patient related groups and corporate members with a strong record of campaigning on behalf of people with rare and complex conditions in need of specialised care. They usually meet quarterly, but this month they held two additional events...
by AKU | Jun 24, 2015 | Uncategorized
Our fifth patient workshop took place at London Zoo on Saturday. It was a great opportunity for patients, family members and friends to meet one another, share experiences and learn more about AKU. The day started off with an hour’s zoo time, where everyone got the...
