by AKU | Dec 13, 2019 | Uncategorized
Five years ago, we partnered with the Royal College of GPs (RCGP) to develop an online eLearning module all about AKU. The aim of this module is to increase awareness of AKU among health professionals, especially GPs, and ultimately to improve diagnosis. This was...
by AKU | Nov 8, 2019 | Uncategorized
Eurordis Digital School At the start of the month Ciarán our Communications Manager travelled to chilly Gothenburg in Sweden to take part in the inaugural Eurordis Digital School. The workshop was held at the Agrenska Resource Centre for Rare Diseases, a facility...
by AKU | Oct 25, 2019 | Uncategorized
We are only one month away from Garrod Day! On the 25th November, we celebrate the birthday of Sir Archibald Garrod, the AKU pioneer who first understood the inherited nature of the disease way back in 1902. Garrod day is marked by hosting coffee mornings all over the...
by AKU | Sep 27, 2019 | Uncategorized
We are busy preparing for our annual Garrod Day Coffee Morning on the 25th of November. This year’s Garrod Day will be an international event, with coffee morning’s being held all over the world. In this week’s blog, you can learn some fantastic top tips on how to...
by AKU | Sep 12, 2019 | Uncategorized
It’s another busy few months here at the AKU Society. We are travelling all over Europe to represent AKU patients and learn new skills at various events from Gothenburg to Barcelona. This week’s blog looks at where we will be and why. SeptemberCambridge Rare Diseases...
