Cambridge Half Marathon 2020 – Meet The Runners

Cambridge Half Marathon 2020 – Meet The Runners

In this week’s blog, we would like to introduce our 2020 Cambridge Half Marathon Runners! The Half Marathon will be on the 8th March starting on Midsummer Common before winding its way through the historic Cambridge centre. We have three runners braving the 13-mile...
The New AKU Society Website

The New AKU Society Website

In this week’s blog, we look at the much-anticipated relaunch of the AKU Society website. Our new site has been designed to be much more user-friendly, accessible and easier to navigate while allowing the most important content to be front and centre. Earlier last...
Jess Barnes – 12 Days of Christmas Sea Swim

Jess Barnes – 12 Days of Christmas Sea Swim

Today’s blog is written by a long-time friend of the AKU Society Jess Barnes. Jess’ son was diagnosed with AKU six years ago. When I found out that the AKU Society needed support in funding the first-ever paediatric study into alkaptonuria, I knew I needed to...
AKU Society Brazil – Flavia at the NIH

AKU Society Brazil – Flavia at the NIH

Today’s blog is written by the head of the Brazilian AKU Society, Flavia Mayrink. Originally written in Portuguese, the blog details her recent visit to the National Institutes of Health (NIH) which is based in Bethesda, Maryland, USA.In September...
SONIA 2 and DevelopAKUre – Results

SONIA 2 and DevelopAKUre – Results

We are delighted to announce that all the data from the SONIA 2 clinical trial has now been analysed and very positive trends have been highlighted. Due to this, SOBI (Swedish Orphan Biovitrum)  announced that they are going to apply to the European Medicines...