Self-Care for Rare

by AKU | Jul 21, 2025

Self-Care for Rare Prioritising wellbeing with AKU Self Care for Rare is our annual wellbeing campaign, held each July to coincide with Chronic Disease Awareness Day and the International Day of Self-Care. The campaign is dedicated to exploring practical ways to...

Beyond the Biology: The Emotional Landscape of AKU

by AKU | Jul 18, 2025 | AKU Blog

Alkaptonuria (AKU) is a rare genetic condition that affects 1 in 250,000 to 500,000 people globally. Caused by a missing enzyme that breaks down a substance called homogentisic acid (HGA), AKU leads to the darkening of bones and cartilage, and can cause joint damage,...

Why Movement Matters: Exploring Water Exercise, Pilates, and Pain Management for AKU

by AKU | Jul 18, 2025 | AKU Blog

When it comes to choosing the right kind of activity, low-impact exercises can help slow the progression of osteoarthritis- a common complication of Alkaptonuria (AKU). While high-impact and contact sports are typically discouraged due to the stress they place on...

FDA Approval, Journal Spotlight and more

by AKU | Jul 10, 2025 | AKU Blog

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Your AKU Society June Newsletter

by AKU | Jun 12, 2025 | AKU Blog

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