AmazonSmile

AmazonSmile

The AKU Society has signed up to AmazonSmile. AmazonSmile is an affiliate marketing service for the online shopping service Amazon. Affiliate marketing is when a company gives some money to a third party for driving web traffic towards its website. In the case of...
RCN Congress 2018

RCN Congress 2018

The Royal College of Nursing (RCN) Congress is the biggest and most important event of the annual nursing calendar. More than 4,000 nurses meet there to learn, share and develop nursing practice and influence health policy debates. This year’s congress, in Northern...
AKU Society at ECRD Vienna

AKU Society at ECRD Vienna

A rare disease is defined by the European Union (EU) as affecting fewer than one in 2,000 people. Considered together, though, rare diseases are common. Between six and eight per cent of the EU population has one of the 7,000 known rare diseases – that’s...
Welcome to our New Trustees

Welcome to our New Trustees

You might have noticed that there have been some recent changes to the board of trustees. Here is an overview of what’s happened. Firstly, we’d like to say goodbye to Colleen Addicott, who is stepping down after 10 years. Colleen has been a great help to us,...
Osteoarthritis and AKU

Osteoarthritis and AKU

Osteoarthritis is a very common joint disease. When cartilage and underlying bone in the joints break down, sufferers can feel pain, stiffness, numbness and swellings. Fingers and thumbs are most often affected, as well as the neck, lower back, knees and...
Second International Workshop (April 2018)

Second International Workshop (April 2018)

April 23rd, 2018 was St. George’s Day. For us, though, it was the start of our second International Patient Workshop. This brought together 89 people – AKU patients, supporters, researchers and staff – from around the world to network and share advice. Patients came...