by AKU | Jul 31, 2018 | Uncategorized
New research has proven for the first time that a drug called nitisinone treats AKU in people. For three years, the Liverpool-based National Alkaptonuria Centre (NAC), which gives nitisinone to English and Scottish AKU patients, was running an observational study to...
by AKU | Jul 25, 2018 | Uncategorized
We have some exciting news. The AKU Society has just been awarded a £60,000 grant from the Childwick Trust. This will fund a research study into children with AKU, called SOFIA-Paediatric (‘Subchondral Ochronotic Features in Alkaptonuria in the...
by AKU | Jul 18, 2018 | Uncategorized
We are looking for a Fundraising Officer. The vacancy is up online and we encourage people to apply. The successful candidate will be the third Fundraising Officer in our history. Our first was Lydia Powell. Lydia joined the AKU Society after taking a...
by AKU | Jul 11, 2018 | Uncategorized
ALCAP (Association pour la Lutte Contre L’Alcaptonurie) is our French sister society. Founded in 2006 by Serge Sireau, it represents over 70 AKU patients in France. Serge is pictured here with his son, AKU Society CEO Nick Sireau, at April’s International Patient...
by AKU | Jun 27, 2018 | Uncategorized
Have you noticed the adverts which appear at the top of Google search result pages? They are created on a platform called Google AdWords. Companies pay millions each year so that their adverts are the first things people see when they use Google. Google for...
by AKU | Jun 20, 2018 | Uncategorized
The Edinburgh Marathon Festival is the second biggest running event in the UK after the London Marathon. Over its 16-year history, it has had a £30 million economic impact on the city of Edinburgh. It has also raised £75 million for hundreds of charities. This year,...
