by AKU | Feb 28, 2023 | AKU Blog
This week’s blog is written by our trustee and AKU patient, Tony Esmond, who recently took part in Sanofi‘s This is Rare Campaign. To mark Rare Disease Day, Sanofi launched their This is Rare Campaign which united rare disease patients, patient group representatives,...
by AKU | Nov 15, 2022 | AKU Blog
Today is Garrod day, an important event in the history of AKU. The 25th of November marks the birthday of Sir Archibald Garrod who first identified that AKU was inherited in 1901. The day is now used to raise awareness of AKU. Our co-founder and trustee Prof Ranganath...
by AKU | Nov 3, 2022 | AKU Blog
Today’s blog is written by Harriet Willett, who has just begun her PhD researching AKU at the University of Liverpool: Hi everyone! I’m Harriet. I am a graduate from Lancaster University with a Master’s in NaturalSciences specialising in chemistry and statistics. I...
by AKU | Sep 26, 2022 | AKU Blog
The AKU Society provides a free and confidential counselling service for all those impacted by AKU, whether you or a family member are newly diagnosed, or have been living with it for some time. This service is provided by David and Rebecca from RaremindsCIC....
by AKU | Jun 28, 2022 | AKU Blog
We would like to give a warm welcome to our newest trustee, Jess Barnes. She joins us as the first female on the board and we are delighted to have her on the team. Jess is a mum to a young son that has AKU and has supported the charity since his diagnosis in...
by AKU | Jun 1, 2022 | AKU Blog
This week’s blog looks back at our 12th International Conference on AKU. After two years of COVID, we were finally able to reunite the AKU scientific community. We heard presentations from 23 speakers, coming from eight different countries, who discussed current and...
