by AKU | Aug 22, 2018 | Uncategorized
This summer, we are looking to update our AKU recipe booklet. We invite patients to send in their favourite recipes, which we will adapt and add to our collection. If you have any ideas, email Lesley at lesley@akusociety.org. The National...
by AKU | Aug 15, 2018 | Uncategorized
The newly published results of a study held at the National Alkaptonuria Centre (NAC) show that a drug called nitisinone improves the health of AKU patients. They also show that it reverses a process called ochronosis, where a black pigment is deposited in tissue as a...
by AKU | Aug 8, 2018 | Uncategorized
We’re really excited about our third Stand Up for AKU Comedy Night on 3rd October. This year, we return to the Portland Arms, Cambridge, for a night of top-class entertainment. The event starts at 7.30pm. Tickets are £11 or £15 on the...
by AKU | Jul 31, 2018 | Uncategorized
New research has proven for the first time that a drug called nitisinone treats AKU in people. For three years, the Liverpool-based National Alkaptonuria Centre (NAC), which gives nitisinone to English and Scottish AKU patients, was running an observational study to...
by AKU | Jul 25, 2018 | Uncategorized
We have some exciting news. The AKU Society has just been awarded a £60,000 grant from the Childwick Trust. This will fund a research study into children with AKU, called SOFIA-Paediatric (‘Subchondral Ochronotic Features in Alkaptonuria in the...
