by AKU | Mar 29, 2017 | Uncategorized
On Friday 10th and Saturday 11th March Lesley attended the 3rd UK Genetic Disorders Leadership Symposium. The goal of the symposium was to bring together leaders of UK based genetic disorder charities and other patient advocates to learn from experts in the field,...
by AKU | Mar 22, 2017 | Uncategorized
Our Sixth Patient Workshop took place on Saturday. Held at Alexandra Palace it was a great venue that was well attended by AKU patients and their family members. In this week’s blog, we talk about how the day went. The day started out with smiles and greeting from the...
by AKU | Mar 15, 2017 | Uncategorized
The London Marathon is one of the most prestigious running events in the world. This year we are lucky enough to have our very own AKU runner compete in the event. Having reviewed several potential candidates we have decided our runner will be Joe England! We believe...
by AKU | Mar 10, 2017 | Uncategorized
Every year people from all over the word come together to celebrate Rare Disease Day. A day designed to raise awareness, bring together the community and to highlight some of the fantastic work that is being done in the rare disease area. This year was the day’s...
by AKU | Mar 6, 2017 | Uncategorized
The AKU Society had seven places in this year’s Cambridge Half Marathon. With each of our brilliant runner’s fundraising for the AKU Society, they raised a fantastic combined total of £1609. Our Admin & Events Officer Robin tells us more about how the...
