by AKU | Apr 27, 2016 | Uncategorized
Last week our first International Patient Workshop took place in Liverpool, bringing together the biggest collection of AKU patients ever! In this week’s blog, find out more about the day and the importance of supporting our international patients and their families,...
by AKU | Apr 20, 2016 | Uncategorized
Today we are hosting our first ever International Patient Workshop in Liverpool. In honour of this monumental occasion, we are introducing 2 of our international patients who have travelled all the way from Canada and Argentina to attend the workshop. In this week’s...
by AKU | Apr 13, 2016 | Uncategorized
Next week our first ever International Patient Workshop will take place in Liverpool. We have had lots of support for our fundraising campaigns, and that has allowed us to offer travel grants so AKU patients from around the world can attend. This week’s blog...
by AKU | Apr 6, 2016 | Uncategorized
On 23rd March, Genetic Alliance UK launched a new patient charter on access to medicines for rare disease patients in Scotland. This week’s blog highlights the important recommendations generated from the project, where a range of patient organisations gave their...
