Our Fifth Patient Workshop: A Day at the Zoo

Our Fifth Patient Workshop: A Day at the Zoo

Our fifth patient workshop took place at London Zoo on Saturday. It was a great opportunity for patients, family members and friends to meet one another, share experiences and learn more about AKU. The day started off with an hour’s zoo time, where everyone got the...
Patients and Pharma: How to Work Together

Patients and Pharma: How to Work Together

Last week was a busy one, with not one, but two events focusing on how pharmaceutical companies and patient groups can work together to create better research. On Monday and Tuesday, Oliver attended EyeForPharma’s conference: “Patient-Centric Clinical Trials”. On...
Encouraging European Collaboration

Encouraging European Collaboration

From the 5th-8th June, we were in Glasgow to attend the European Human Genetics Conference. As a charity, we were given a stand in the exhibition hall of the conference, allowing us to raise awareness of AKU at this fantastic event. In today’s blog Sorsha shares how...
Roll up for our Raffle!

Roll up for our Raffle!

Roll up roll up, because today we launch our spectacular raffle! In today’s blog find out why we are doing the raffle, what prizes are up for grabs, and how you can buy and sell tickets. An International Patient WorkshopDue to its rarity, it’s often difficult to get...