Spartan: Are you up for the Challenge?

Spartan: Are you up for the Challenge?

We’ve got some free charity spaces up for grabs for the upcoming Spartan races this year. But what is the Spartan race, and what makes it different from your standard charity run? In this week’s blog we explain the challenge, and ask you if you are up for it. The...

Meet Hollie, Your New NAC Coordinator

Today we introduce the new Coordinator for the National Alkaptonuria Centre (NAC) in Liverpool. Hollie Washington is 25, and has lived in Liverpool all her life. This week she has traveled all the way down to Cambridge to visit the AKU Society office, and learn all...

Attending the World Orphan Drug Congress USA

At the end of April, Nick was in the USA attending the World Orphan Drug Congress. In today’s blog he tells us why he attended the event, and what he learnt from his time there. I’m just back from the World Orphan Drug Congress USA in Washington DC, where I...
Stepping Up Our Fundraising

Stepping Up Our Fundraising

So far as a charity our biggest community fundraising projects have taken the form of crowdfunding campaigns. Aside from these, grant applications have been our main source of funding, alongside the occasional sponsored event organised by our dedicated supporters. We...