How are Specialised Services Commissioned?

How are Specialised Services Commissioned?

On Monday, our Chairman, Nick Sireau, attended the Annual General Meeting for Rare Disease UK. Rare Disease UK is a membership group for rare disease charities. AKU Society is a member, which allows us to help guide Rare Disease UK’s work in lobbying the UK Government...
An Update on DevelopAKUre

An Update on DevelopAKUre

As most of you will know, we launched clinical trials called DevelopAKUre in 2012. These trials are based in three sites around Europe (Liverpool, UK; Paris, France and Piestany, Slovakia) and will assess the drug nitisinone to test whether it is an effective...