Information For International Patients aimAKU aimAKU is the patient support group for AKU patients and their families in Italy. Access their website here. AKU Society APAC The AKU Society of Asia-Pacific is the patient support group for AKU patients and their families...
Contact the Counsellors If you are interested in counselling, or have any questions, please contact [email protected] or 01727 752147. If emailing, please check your spam/junk folder if you haven’t received a reply after 5 working days. If phoning...
AKU Counselling Living with AKU can be stressful and challenging in all sorts of ways. It can impact on how you feel about yourself, your relationships or your life generally. Although friends and family can be very supportive, it is not always easy to talk to people...
Nitisinone Nitisinone Nitisinone is now officially licensed to treat AKU in the European Union. In the UK, patients who attend the National AKU Centre are prescribed 2mg daily.¹ Clinical research has shown that that nitisinone reduced HGA levels by up to 95%.² From...
Social and Financial Information Financial Information AKU is a debilitating disease. It can leave patients unemployed, immobile and in need of care. If you are worried about the financial implications of living with AKU, this page will list where to find help, with...
