by AKU | Nov 26, 2014 | Uncategorized
Two weeks ago Duncan Batty went to speak at the World Orphan Drug Conference in Belgium. Duncan is a volunteer for us here at the AKU Society, and is himself an AKU patient. In this week’s blog he gives us an insight in to the conference, and what it was like giving a...
by AKU | Nov 6, 2014 | Uncategorized
For our patients who are on the drug nitisinone, keeping to a low protein diet is very important. In this week’s blog we introduce you to a helpful website, where you can find a great low protein seasonal treat to make at home! Adapting to Low Protein Evidence so far...
by AKU | Oct 17, 2014 | Uncategorized
On 12th September, Findacure held a workshop at the Royal College of Nursing in London on how to manage a small rare diseases patient group. Our own CEO and Chairman, Nick Sireau, spoke on his experience managing the AKU Society. In this week’s blog we hear about some...
by AKU | Sep 24, 2014 | Uncategorized
This Friday will be our Clinical Trial Coordinator, Hana’s last day at the AKU Society. In this week’s blog post, Hana has answered questions from the rest of the team about her time at the AKU Society and her plans for the future. What’s your AKU story? I first heard...
by AKU | Sep 9, 2014 | Uncategorized
We’re excited to announce our next AKU scientific meeting on Thursday 16 October 2014. The 8th International Workshop on AKU will take place in Stockholm, Sweden at the Hotel Ariadne. We’re kindly being hosted by Sobi, and a meeting of...
