by AKU | Feb 18, 2015 | Uncategorized
Our crowdfunding campaign on Indiegogo has been officially launched. We now need your help to hit our $30,000 target before the end of March. In this week’s blog we let you know how you can help, and where your money will go. Our new campaign launched just yesterday,...
by AKU | Feb 11, 2015 | Uncategorized
On Tuesday 17th February we will be launching a new crowdfunding campaign on Indiegogo! In 2013 we raised over $100,000 thanks to your generosity and support. In this week’s blog we explain why it is time for another campaign. In just 6 days time we will be launching...
by AKU | Feb 4, 2015 | Uncategorized
On Friday 30th January the AKU Society team were invited to attend a patient workshop organised by Findacure in London. The focus of the afternoon was on how to identify rare disease patients. Identifying patients is one of the biggest challenges faced by rare...
by AKU | Jan 14, 2015 | Uncategorized
As most of you will know, we launched clinical trials called DevelopAKUre in 2012. These trials are based in three sites around Europe (Liverpool, UK; Paris, France and Piestany, Slovakia) and will assess the drug nitisinone to test whether it is an effective...
by AKU | Dec 3, 2014 | Uncategorized
Our Fourth Patient Workshop took place on Saturday, at Goodison Park, the home of Everton Football Club in Liverpool. It was a great venue, and the workshop was well attended. This week we talk about what we learnt from the day, and how it went. The day began at 10am...
