by AKU | May 27, 2015 | Uncategorized
We’ve got some free charity spaces up for grabs for the upcoming Spartan races this year. But what is the Spartan race, and what makes it different from your standard charity run? In this week’s blog we explain the challenge, and ask you if you are up for it. The...
by AKU | May 6, 2015 | Uncategorized
So far as a charity our biggest community fundraising projects have taken the form of crowdfunding campaigns. Aside from these, grant applications have been our main source of funding, alongside the occasional sponsored event organised by our dedicated supporters. We...
by AKU | Apr 15, 2015 | Uncategorized
In today’s blog we simply want to say a huge thank you to everyone who donated to our crowdfunding campaign on Indiegogo. Thanks to your incredible contributions we smashed our target, and can now support patients to take part in our latest research. When...
by AKU | Mar 11, 2015 | Uncategorized
Last week, Oliver attended the RD-Connect conference in Palma de Majorca. Oliver is a member of the Patient Advisory Council (PAC), a working group run by Eurordis to provide patient input into the RD-Connect project. This week he writes about the topics covered at...
by AKU | Mar 4, 2015 | Uncategorized
This year the AKU Society Team had a fantastic time celebrating Rare Disease Day at various different events. In this week’s blog we give a summary of these events, and their Rare Disease Day messages. Parliamentary Reception On Wednesday...
