by AKU | Oct 28, 2015 | Uncategorized
Wednesday 25th November is Sir Archibald Garrod’s birthday and to celebrate we are asking our supporters to host a Coffee Morning to raise awareness and money for AKU. In this weeks blog, AKU team members Eve and Lydia bake their own cakes to share recipe ideas...
by AKU | Sep 9, 2015 | Uncategorized
Are you a registered organ donor? Did you know, even if you have a genetic condition, you can still join the NHS Organ Donor Register? It’s National Transplant week, and today Hannah, our Patient Support Manager, talks about organ donation, and what AKU...
by AKU | Aug 5, 2015 | Uncategorized
In June we held our 5th Patient Workshop at London Zoo. As I’m sure those of you who attended can recall, the day included a chair-based exercise session. Following the success of the workshop, Hannah, our Patient Support Manager, recently attended a four day course...
by AKU | Jul 1, 2015 | Uncategorized
We are currently promoting a survey which aims to discover how we can improve our resources and services for everyone. We also want to find out about the quality of life our patients experience, and how our services impact on this. In this week’s blog we explain why...
by AKU | Jun 3, 2015 | Uncategorized
Roll up roll up, because today we launch our spectacular raffle! In today’s blog find out why we are doing the raffle, what prizes are up for grabs, and how you can buy and sell tickets. An International Patient WorkshopDue to its rarity, it’s often difficult to get...
