Get Involved Volunteer or Fundraise for the AKU Society We are always looking for volunteers to help support our mission of improving the lives of all those living with AKU and their loved ones. By supporting us with your time and talents, you can make a direct impact...
AKU Research Bursary Award We are pleased to announce that we are launching a bursary scheme for scientific research into alkaptonuria (AKU). Designed to support early-stage researchers who are committed to advancing our understanding of AKU, successful applicants...
Information For International Patients aimAKU aimAKU is the patient support group for AKU patients and their families in Italy. Access their website here. AKU Society APAC The AKU Society of Asia-Pacific is the patient support group for AKU patients and their families...
Patient Communities Rare disease patients often report feeling lonely and isolated due to the lack of awareness and understanding surrounding their disease. Patients are sparsely located all over the world and it can be difficult to identify and connect with one...
Contact the Counsellors If you are interested in counselling, or have any questions, please contact [email protected] or 01727 752147. If emailing, please check your spam/junk folder if you haven’t received a reply after 5 working days. If phoning...
