by AKU | Nov 11, 2015 | Uncategorized
Last week, Oliver attended the project board meeting of ASTERIX. Oliver represents the DevelopAKUre clinical trials on their patient think tank, and in today’s blog explains how the involvement helps the AKU Society. ASTERIX is a European Commission funded...
by AKU | Nov 4, 2015 | Uncategorized
Rare disease patients often report feeling lonely and isolated due to the lack of understanding surrounding their disease. Patients are sparsely located all over the world and it can be difficult to identify and connect with other patients. This is why we...
by AKU | Oct 28, 2015 | Uncategorized
Wednesday 25th November is Sir Archibald Garrod’s birthday and to celebrate we are asking our supporters to host a Coffee Morning to raise awareness and money for AKU. In this weeks blog, AKU team members Eve and Lydia bake their own cakes to share recipe ideas...
by AKU | Oct 13, 2015 | Uncategorized
Monday 12th October was World Arthritis Awareness Day and people from around the world showed their support by sharing a high five image to raise awareness of rheumatic and musculoskeletal diseases (RMDs). The theme of the day was ‘its’s in your hands, take action’,...
by AKU | Oct 7, 2015 | Uncategorized
Last week the whole team attended a special training day run by Dramatic Resources on presentation skills. This week’s blog talks about the many tips and skills we learnt throughout the day! The rarity of AKU means that a large part of our role is to raise awareness,...
