Nitisinone Nitisinone Nitisinone is now officially licensed to treat AKU in the European Union. In the UK, patients who attend the National AKU Centre are prescribed 2mg daily.¹ Clinical research has shown that that nitisinone reduced HGA levels by up to 95%.² From...
Social and Financial Information Financial Information AKU is a debilitating disease. It can leave patients unemployed, immobile and in need of care. If you are worried about the financial implications of living with AKU, this page will list where to find help, with...
Volunteer Volunteer at the AKU Society We are always on the lookout for people who would like to work with us at the office or from home. In the past, we have had several people volunteer their time and expertise to support the day to day work of the AKU Society. From...
Diet Diet & AKU: Controlled Protein Diet With Nitisinone Patients who are not taking nitisinone should not change their diet without consulting their doctor. Children should not reduce their protein levels. When patients attend the National AKU Centre (NAC) and...
Self-Management Managing Pain With Alkaptonuria Joint pain is a serious and debilitating symptom of AKU. Inadequate pain control may lead to limited use of the affected joint, reducing its range of movement. Physical and occupational therapy are important to maintain...
