Documentory

Join Black Bones – A Documentary About Living with Alkaptonuria! We are excited to announce the start of Black Bones, a powerful documentary dedicated to telling the real stories of people living with alkaptonuria (AKU). This film will not only raise awareness but...

Workshop FAQs

Workshop FAQs Where is the workshop taking place? The workshop is being held at Holiday Inn Liverpool City Centre, Lime Street, Liverpool, L1 1NQ It is located right opposite Liverpool Lime Street train station, and has access to a secure car park, so provides...

AKU International Patient Workshop 2024

AKU International Patient Workshop 2024 This year, the AKU International Workshop takes place on the 13th and 14th November, at The Holiday Inn, Liverpool, UK. We will be welcoming attendees from around the world for this two day event, to learn more about AKU from...

Independent Scientific Advisory Board

Independent Scientific Advisory Board Our independent scientific advisory board consists of world-leading experts on AKU. Together, they help to guide our scientific research by advising on study design and the awarding of funding. Crucially, our board helps to foster...
Liesbeth’s research visit to the University of Liverpool

Liesbeth’s research visit to the University of Liverpool

Our latest blog is written by Liesbeth Desmet, a PhD student at the Vrije Universiteit Brussel (VUB). She recently participated in our early-stage researcher bursary programme to visit the University of Liverpool and expand her knowledge of AKU research: I am a PhD...