by AKU | Sep 21, 2015 | Uncategorized
Nick has been involved in The AKU Society for over 10 years; becoming trustee in 2003, chairman in 2005 and CEO in 2010. He is now leaving his CEO position to take on a role in AstraZeneca, but will remain chairman and continue to be involved in the...
by AKU | Sep 2, 2015 | Uncategorized
This week we have a new member of staff at the AKU Society. Her name is Lydia Powell, and she is our first ever Fundraising Officer. Over the next few months she will be building up our fundraising activities, enabling us to do even more exciting projects to help AKU...
by AKU | Mar 18, 2015 | Uncategorized
On Saturday 7th March Hannah, Eve and Nick attended the 1st Annual Genetic Disorders Leadership Symposium in London. The goal of the symposium was to bring together leaders of UK based genetic disorder charities and other patient advocates to learn from...
by AKU | Oct 28, 2014 | Uncategorized
Our AKU Workshop in Stockholm brought together a great range of people, from researchers to patients, to staff from the National Alkaptonuria Centre (NAC) in Liverpool. Alistair has been Coordinator at the NAC since March, and this was his first international...
by AKU | Aug 23, 2014 | Uncategorized
Jenni is a Cambridge student who is interning with us here at the AKU Society for four weeks. She’s been here for two weeks already and has another two weeks to go. In today’s blog we find out a bit more about her and the experience so far. What are you...
