by AKU | May 23, 2018 | Uncategorized
You might have noticed that there have been some recent changes to the board of trustees. Here is an overview of what’s happened. Firstly, we’d like to say goodbye to Colleen Addicott, who is stepping down after 10 years. Colleen has been a great help to us,...
by AKU | May 16, 2018 | Uncategorized
Osteoarthritis is a very common joint disease. When cartilage and underlying bone in the joints break down, sufferers can feel pain, stiffness, numbness and swellings. Fingers and thumbs are most often affected, as well as the neck, lower back, knees and...
by AKU | Apr 11, 2018 | Uncategorized
There are over 7,000 identified rare diseases. Eighty per cent of them are genetic, like AKU. Together, they affect 3.5 million people across the United Kingdom. Each individual disease, though, only has a small patient population. Because of...
by AKU | Mar 7, 2018 | Uncategorized
On Wednesday February 28th the world marked Rare Disease Day. This annual event was set up by EURORDIS, a European alliance of rare disease patient groups, in 2008, to meet a pressing need. There were lots of days representing sufferers of specific...
by AKU | Dec 20, 2017 | Uncategorized
So 2017 is finally coming to an end. This year has been one of our busiest yet, with THREE patient workshops, a flurry of fundraising activity and even a bit of globe-trotting to promote the AKU Society! We have lots of plans for 2018, which we will release early in...
