Our Staff

by AKU | Aug 3, 2023

Our Staff Staff Nick Sireau CEO & Chairman of the Trustees Ever since Nick’s sons were diagnosed with AKU, he has been involved with the society. When it was set up in 2003, Nick became a trustee and has served as CEO since 2010.  Now, as Chairman of the trustees,...

Information for Healthcare Professionals

by AKU | Jul 20, 2023

Information for Healthcare Professionals Alkaptonuria (AKU) was the first condition noted as following Mendelian Inheritance by Sir Archibald Garrod in 1902. ¹ Since then, more work has been done to understand its genetic mechanism. AKU is now understood to be a...

AKU Society Brazil – Flavia at the NIH

by AKU | Dec 16, 2019 | Uncategorized

Today’s blog is written by the head of the Brazilian AKU Society, Flavia Mayrink. Originally written in Portuguese, the blog details her recent visit to the National Institutes of Health (NIH) which is based in Bethesda, Maryland, USA.In September...

One Month to Go until Garrod Day!

by AKU | Oct 25, 2019 | Uncategorized

We are only one month away from Garrod Day! On the 25th November, we celebrate the birthday of Sir Archibald Garrod, the AKU pioneer who first understood the inherited nature of the disease way back in 1902. Garrod day is marked by hosting coffee mornings all over the...

DevelopAKUre – A History

by AKU | Aug 2, 2019 | Uncategorized

Today’s blog is written by Nick Sireau the Chair and CEO of the AKU Society, It was in 2003 that I sat down with Robert Gregory, Prof Alan Shenkin and Prof Ranganath in an office at the Royal Liverpool University Hospital and discussed where we wanted to go with the...